The Mesothelioma Charter

We believe people with mesothelioma, and their families, have a right to:

  • a speedy and accurate diagnosis, supported by a multidisciplinary team discussion
  • good quality information from a variety of sources available in different media and languages
  • support of a suitably qualified nurse and other¬†multidisciplinary team members throughout their illness
  • be considered for the best possible treatments available with the support and input of a multidisciplinary team
  • have up-to-date advice on benefits and help in applying for them, and receive prompt payment of benefits
  • have legal advice and guidance from a firm of solicitors experienced in mesothelioma claims
  • guidance on end of life decisions and care at home
  • provision of a consistent nationwide service from coroners using a clear and open process with a maximum case length of three months

We call upon the Government to:

  • have mesothelioma made a national priority by the Cancer Tsar
  • fund good quality research, alongside other national bodies, on mesothelioma with a view to improving diagnosis, treatment and outcomes for patients
  • support the production of clinical guidelines on the best practice of diagnosis and management of mesothelioma
  • ensure the health and safety executive vigorously enforce existing regulations on asbestos

We call upon all employers to:

  • prevent future exposure to asbestos by providing a safe working environment with all necessary equipment to protect employees.
  • work with unions and individuals to ensure enforcement of current regulations to safeguard all employees.
  • identify all asbestos in their properties and organise its safe removal where practical or necessary when work is being carried out