The Mesothelioma Charter

We believe people with mesothelioma, and their families, have a right to:

• a speedy and accurate diagnosis, supported by a multidisciplinary team discussion
• good quality information from a variety of sources available in different media and languages
• support of a suitably qualified nurse and other multidisciplinary team members throughout their illness
• be considered for the best possible treatments available with the support and input of a multidisciplinary team
• have up-to-date advice on benefits and help in applying for them, and receive prompt payment of benefits
• have legal advice and guidance from a firm of solicitors experienced in mesothelioma claims
• guidance on end of life decisions and care at home
• provision of a consistent nationwide service from coroners using a clear and open process with a maximum case length of three months

We call upon the Government to:

• have mesothelioma made a national priority by the Cancer Tsar
• fund good quality research, alongside other national bodies, on mesothelioma with a view to improving diagnosis, treatment and outcomes for patients
• support the production of clinical guidelines on the best practice of diagnosis and management of mesothelioma
• ensure the health and safety executive vigorously enforce existing regulations on asbestos

We call upon all employers to:

• prevent future exposure to asbestos by providing a safe working environment with all necessary equipment to protect employees.
• work with unions and individuals to ensure enforcement of current regulations to safeguard all employees.
• identify all asbestos in their properties and organise its safe removal where practical or necessary when work is being carried out